celebrities with bicuspid aortic valve

I played competitive amateur football (soccer) on Saturday and Sunday from age 16. Bicuspid aortic valve is a common congenital anomaly but does not cause functional problems unless aortic valve stenosis, aortic valve regurgitation, aortic root dilatation, or dissection or infective endocarditis occurs. Any advice would be greatly appreciated. No aortic root dialation. I have been doing as much research as possible on what are the advantages/disadvantages of each replacement. 2k erg test. Anyway, it has slowed to 1 mm per year, and, via email, Dr. Dietz has suggested we may consider a switch to 300 mg Libersartan? Yes, there are many athlete patients whove had operation for BAV/aortic replacement and returned to a variety of sports. I have: Lastly, Id say that BAV alonewithout leakage or narrowing of the aortic valve, and without enlargement of the nearby aortawould not preclude sports activities of any sort. Normal LV diastolic function. I know they really should get checked, and they will. In practice, the indications for aortic valve replacement for severe aortic stenosis or severe aortic regurgitation are straightforward and uncontroversial. I asked my surgeon and also the echocardiographist about my sports performance after full recovery, about 6 months after the surgery. Are there any things I can do now to help minimize my risk? We generally limit weight-lifting (or other sports/exercise that have a high static component) for athlete patients with BAV and mild enlargement of the aorta. He posed next to statues of Thomas Jefferson, Jesse Owens (whose family moved to Cleveland when he was nine, and who later attended The Ohio State University), and Abraham Lincoln. I used to do HIIT and moderate to heavy weight 5 days a week before my physical complications. Palace Insiders Say Prince William Is Already Furious About Prince Harrys Memoir Leaks, Prince Harry alleges Prince William attacked him over Meghan Markle in a new excerpt from, Scene Stealer: The True Lies of Elisabeth Finch, Part 1, Rupert Murdoch Knees Trump in the Balls While Hes Doubled Over Coughing Up Blood, By BG017/Bauer-Griffin/GC Images/Getty Images. (Have you heard of the studies by Dr. She learned she needed an aortic valve replacement in 2009 and underwent open heart surgery, receiving a mechanical valve to replace her damaged aortic valve. Aortic Stenosis I used to run a lot. Apologies for my slow reply. I understand its strenuous activity but if Im for example bench pressing it will get harder for me to put it up at the 8th rep.. Beta blockers are frequently prescribed in the circumstance you describe, but in truth we dont know if they will be effective in delaying surgery for any given patient. And he never had any symptoms and played competitive soccer since he was 6. I am a competitive cyclist, neither the Cardio or my Doctor said I should not be racing bikes anymore, does that sound reasonable to you, my doc did say to monitor the aortic root size yearly. I have just one thing bothering me, and that is healing of tissue surrounding heart and also chest muscles, nerves and so on. Bicuspid aortic valve (BAV) disease is the most common congenital heart defect, as it affects 1.3% of the adult general population . Bicuspid aortic valve (BAV) disease does not usually cause symptoms. Last i took him for the check up and everything is still the same but they said now the guidelines has changed and he is on the borderline of Mild to Moderate which will move him to restricted activities. Many people in your situation will eventually need operation for replacement of the valve or the aorta, but wed need a crystal ball to know about the future. CT or MRI may be more accurate. Dear Dr. Creswell, This can cause the valve to malfunction and prevent blood from flowing correctly from the . I cant distinguish if its muscle pain or somewhere inside chest, its not sharp or dull, somewhere in between. Thank you for the follow-up! Thanks for the very insightful post, and for taking the time to reply to everyone here. John Fox, NFL coach, suffered from Aortic Valve Disease. We have contacted the Cleveland Clinic to learn more and will report back soon. By clicking Accept All Cookies, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. The doctor said she would see if she could talk about his case with the surgical panel but she said even if he did have surgery he couldnt have a career in sports??? Everyones symptoms are different but I felt compelled to share mine. Like I said, peoples experiences are all different. Robin Williams - Aortic Valve Replacement & Mitral Valve Repair. "Were saying to put the focus back on you and make a date with your heart.". A bicuspid aortic valve is a congenital heart defect that affects the one-way valve between your heart and your aorta, known as the aortic valve. I have also been advised that running intervals at over 80% max heart rate would not be sensible. Thanks for the enlightening article. (liver cysts noted). What is the average life span of a tissue valve? Adam Pick is a heart valve patient and author of The Patient's Guide To Heart Valve Surgery. They all cause a small bit of obstruction to blood flow as it leaves the heart. Diagnosed last year while looking at something else. http://www.24hourgym.us. The truth is that there is not much scientific information about what happens to such athletes if they do return to endurance sports. To much info to much detail so much information and advice. I found myself in emergency surgery 12 months ago with 50% leakage, an enlarged heart and an ejection fraction of 30. Unfortunatly that`s pretty much all the advice i`ve been given so far, so little out there on what i can actively do and what i can`t. Thank you for your time Dr.! I lifted weights for many years and spent almost all my life in physically demanding jobs. This content can also be viewed on the site it originates from. Unanswered questions include: Can a bioprosthetic valve wear out more quickly than expected? I cant imagine life without CrossFit, but I wont be able to continue will I? Tetyana. A faulty aortic valve isn't something you want to have considering that it helps blood flow out of the heart and through the rest of the body. She partnered with the American Heart Association to encourage others to get CPR training that could potentially be life-saving. I would think that, ordinarily, a homograft would heal up along a similar timeline to other types of valve/aortic root replacement. I cant thank you enough for your responses to all the above questions. I would just like to share my experience of having a Aortic Valve replacement. My son is devastated, depressed, and wanted to play ball in college. Typically, the aortic valve has three cusps (tricuspid aortic valve), but some people are born with an aortic valve that has two cusps (bicuspid aortic valve). This can lead to stretching apart of the valve leaflets and leakage at the valve, known as regurgitation. Enlargement of the left ventricle can be an indication that the heart suffers from the aortic regurgitation, even if the regurgitation doesnt produce symptoms like shortness of breath. Theres a saying if you watch a group of kids running around, you would never know who had a heart defect unless they lifted their shirt. This list, which may shock you, includes Olympians, Athletes, Musicians and more, all with an invisible illness. I had it replaced in 2014 and am now 16. I recently also did a 24hr EKG (holter) which was fine. He is football player and he has training 5 times per week (for about 1,5 hours each). They ruled out Marfans syndrome because his aorta was dilating. Also is it possible to never need surgery to replace the valve and that the AR stays stable, or even goes away ? Eventually I will need valve replacement. Ive heard from a fair number of endurance athletes after having aortic valve operations of one sort or another. Tyler. The CVTI is waging war against the leading cause of death among American men and women - heart disease. Now Id like to know your opinion about physical performance, before and after. An echocardiogram last June revealed a function BAV. ANYTHING other than walking and golf? My heart rate some time is 100. I did cardio training 3 times a week and weight training twice a week for 60 years. I am big for my age . As of Monday, my BP at the echo appointment read 115/66. I would prefer not to stop. ), What do you think? Check out Anthony DiLemmes blog, Anthonys Heart Valve Replacement Saga. In addition to being patients, there are many celebrities who, like you, parent a child with CHD as well. A bicuspid aortic valve: Most people are born with an aortic valve that has three leaflets (a tricuspid aortic valve). I got checked out by my GP who detected a murmur then had all the other heart related tests and was diagnosed with BAV with stenosis and regurgitation. And, of course, its important to monitor over time the function of the prosthetic aortic valve and the size of the aorta. 5 months ago was diagnosed with severe AR and 5 cm long aneurism (root 3.0 cm, sinusi valsave 4.3cm, ST 3.6cm, ascending aorta 3.6cm) on regular yearly checkout, with no syptoms. Im not sure how you should best sort out the differing recommendations from your doctors. The valve can gradually become harder to open or leakier . I had my BAV replaced in Feb. 2005 (porcine tissue) with a Dacron repair of the ascending aorta. She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. Patients whove had aortic valve replacement and/or replacement of the aorta will require life-long monitoring by their doctor, with periodic echocardiogram and/or chest CT scanning. At this appointment she advised that there has been some progression in his regurgitation and she did a stress test on him which did not show any concerns and hey was a ble to do it for almost 12 minutes. "Heart disease is the number one killer of all Americans, the number one killer of African-Americans and the number one killer of women, so I shouldve been put on notice since Im three-for-three. I am followed every 2 years. I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. Miley Cyrus - Singer & Actress - Tachycardia. I have also spoken with Boston Childrens Hospital who have been very helpful and enlightening. To me, cardiologists are not sports people and air on being absolutely over cautious. that suffer from heart valve disease along with a link to the reference story about heart valve disease and their Twitter handle to tweet on and promote the Valve Disease Day. Click to share on Twitter (Opens in new window), Click to share on Facebook (Opens in new window). There can be issues with aches and pains even months after operation that still relate to healing. Consensus guidelines suggest that athletes with mild aortic regurgitation and no other heart problems can participate fully in their sports. Im not surprised that youve received a conservative recommendation about exercise. He is very athletic. This is the only measurement that has gone down . It would be great to know what happens to groups of patients after AVR and aortic replacement that have returned to their various sports. James Cameron checks in from Pandora with a status report. And my doctor do not give me responsive and exact answer to my questions regarding sports. For most athletes with only mild enlargement of the aorta and no problems with the aortic valve, there should be no activity restrictions. I took it up 7 years ago. Its always good that investigators are looking for new solutions to old problems. Etc? Who Qualifies for TAVR. Data from these studies supported the U.S. Food and Drug Administration's approval of TAVR for low-risk individuals - replacing a narrowed aortic valve through a small incision in a procedure .